Hereditary Hemochromatosis

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Selected Bible Verse

For the word of God is quick, and powerful, and sharper than any twoedged sword, piercing even to the dividing asunder of soul and spirit, and of the joints and marrow, and is a discerner of the thoughts and intents of the heart.

Hebrews 4:12

Guests' Messages
Page 1 of 2 pages. 20 total entries.

My name is:	Gerry Kenny
I am from:	Dublin Ireland
Homepage:
My Email:	gerrykenny@vodafone.ie
Time visited:	Saturday November 25, 2006 5:32:45 PM
My message:	Delighted i found this web site. found more on this than any of my doctors have told me. if anyone out there could email me and let me know how they have suffered i would be delighted. I have gone through a bad time of it with HH Please help if you can Gerry

My name is:	Judith C Lillie
I am from:	Rochester, NY
Homepage:
Time visited:	Tuesday June 10, 2008 1:34:01 PM
My message:	I and my 2 younger brothers are Hemocgromatosis patients. Our father had Thalassemia Minor and died from Leukemia a few years ago. My brothers have low Ferririn levels due to therapeutic phlebotomies on a regular schedule. My first Ferritin level was 6000. It is now 95. I am too anemic to continue on with more phlebotomies.Do you have any suggestions to boost my HCT? I take 4mg of Folic acid dailey.

My name is:	Julia
I am from:	Australia
Homepage:
Time visited:	Monday May 14, 2007 2:40:12 AM
My message:	After recently discovering that i could stick magnets to myself I did some research on excess iron and found Hemochromatosis. After reveiwing my history and the information on your page my doctor agrees that it is highly likely that i have it. Thank you for your help. I will be tested on friday.

My name is:	John Woelkers
I am from:	North Carolina
Homepage:
Time visited:	Wednesday January 24, 2007 10:39:34 PM
My message:	I was diagnosed with HH about 1 year ago. Went through weekly phlebs until my hemoglobin level went too low. Switched to bi-weekly....then every 3 weeks and so on.....had a 4 month break to check iron build up and now am back on every 6 weeks.....I love your site...tons of info...great links...thank you very much

My name is:	Kristy Anderson
I am from:	Aragon, GA
Homepage:
Time visited:	Monday September 11, 2006 11:53:15 PM
My message:	I am 28 y.o. and I was diagnosed with HH 2 years ago. I have an identical twin sister who is only a carrier! So far, I am the only one in my family that has HH. Currently I only have to have phlebotomies done every 3-6 months.

My name is:	Barry Loflin
I am from:	Upperlake, Ca
Homepage:
Time visited:	Monday December 26, 2005 4:52:02 PM
My message:	I am a male RN, of Irish nationality and was diagnosed as having HH about 2 years ago. In the 2 years I have done the weekly and every other week phlebotomies and brought my ferritin level from 1500 down to 42. Its very difficult explaining to a physician the aches and pains that i believe are related to my condition. I now take every opportunity to educate others about this very common and potentially deadly disease.

My name is:	Liz
I am from:	Pennsylvania
Homepage:
Time visited:	Sunday November 20, 2005 5:01:31 PM
My message:	Thank you so much for doing this!!! Even my hematologist said this was "rare" and we would just "keep a watch". Thank God my neurologist knew better. Keep up the good work!

My name is:	Cathy Mayo
I am from:	Altamonte Springs, Florida
Homepage:
Time visited:	Wednesday June 29, 2005 4:26:18 AM
My message:	I've been searching for many years for an answer to health problems in my family. Not having a medical background, having family members who refuse to see doctors and the few times doctors were consulted, being screened by them in the "usual way", have left me without answers. I believe HH is what I've been searching for. Next step - testing. I'll let you know what happens.

My name is:	Jessica Jones
I am from:	Indianapolis, IN
Homepage:
Time visited:	Thursday April 7, 2005 10:58:47 AM
My message:	I hate going to the hospital for this stupid disease!

My name is:	Irshard Careem
I am from:	Colombo, Sri Lanka
Homepage:
Time visited:	Wednesday February 2, 2005 4:37:36 AM
My message:	I am a Hemeocromotosis Patient. Blood Picture was suggestive of Chronic Liver Disease, most likely Cirrohsis. In October 2004 my Ferritin level was 1350 TIBC & Transfering Saturation was high. Since Oct I have been done 4 times venesection. Now ferritin level has come to 511.

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